May 6, 2013

Hi everyone,

I got the results of my latest MRI this morning and all is good. I have recently passed the 5 year survivor mark. The support of family, friends, and others that I have never met, have made this possible. I am into my tenth month of daily chemo, and handling it pretty good. Much better that I handled the first 14 months back in 2008, 2009. Still having some problems with my right side, but nothing terrible.

As I mentioned in earlier blogs, we were collecting money for the Angels Among Us celebration at Duke in North Carolina. This money is used for brain cancer research at Duke. Our team raised $2800 for this cause, and a total of $2,015,000 was raised to help find a cure for brain cancer. We traveled to Duke for this event. It was great to see other survivors, to see my former Doctor’s, nurses and hospital staff. Survivors are honored and the fallen are remembered. It was a wonderful event, but also so sad to meet some of the families who have lost.

It’s just a matter of time before a cure is found for brain cancer. Progress is being made every day. I thank God each day for allowing me to survive this long.

Take care,     Jamie

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4 Responses to May 6, 2013

  1. Steve says:

    Congrats on the 5 years. I can’t believe it’s been five years since the news but I know it has been a difficult journey -and an inspiring one.

    You and your family are in our thoughts.

  2. jamie says:

    Thanks Steve!

  3. Judi says:

    Hi Jamie,
    I have been searching the web in regards to Avastin and I ran across your blog.
    I am writing to you because my husband has gliobastoma multiforme and now requires Avastin.
    I was shocked to find out over the last 48 hrs that his cancer has spread in his brain he has has several seizures in the last few weeks and now the last thing they can recommend is Avastin.
    But it is not covered in Ontario or through my employee benefits.
    I am appalled, I cannot believe it.
    In order to try to keep my husband from dying it will cost $7200 every 2 weeks, Roche an assistance program will extend a subsidy of 20%.
    I am going to contact my local MPP but again I don’t understand how other provinces can extend this to patients but majority will not.
    I will pay any price to help save my husband but I am the lone breadwinner for 5 yrs. I have a daughter in college. I have supported my husband in every way as well as maintaining a full time job.
    I wonder if there is any advice you can give it would be appreciated.

  4. Judi says:

    Messing up on commenting on your blog sorry I am new at this. See previous comment thanks Judi.

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