Feb. 21/2013

Hi again,

It’s been a while, but I have only been updating my blog when I get MRI results. Other than that, there hasn’t been much new happening with me. My new granddaughter is doing great. My daughter, due in May, is doing great. Meme is doing well. I’m doing well, so I have nothing to complain about. I received a call this morning from my oncologist, and last weeks MRI is good. No recurrence. Yup, pretty happy about that! I’m continuing on with daily Temodar. I just completed 6 months of it and starting the seventh. Next MRI, the end of April. Weather has been all over the place. Wind chills of almost -40 C a couple of weeks ago to +11 C yesterday morning. Several snow storms and then rain to melt it off.

As you know, I am not going to Duke anymore because of my recurrence in June, and subsequent surgery. However, Duke and the vaccine CDX-110 are the reason I am able to write this blog today. On the 23rd of February, it will be 5 years survival from first symptoms. Those that know the survival rate of GBM patients know that this is not very common. Therefore, Meme and I feel an obligation to help Duke raise funds for Brain Cancer Research. While at Duke, and attending 2 previous Angels Among Us events, we have seen the devastating effect of what a diagnosis of brain cancer can do to a family. From the very young to the old, it has no mercy. Last year the Angels Among Us event raised $1.8 million dollars towards research. As Dr. Freidman said, discoveries in brain cancer treatment will be made that would not have been possible without this money. The vaccine that I was taking is being used in trials in many  centers across the US and some in Canada now. I heard that it is being used in Halifax, Nova Scotia now. Meme and I have entered a team again this year to help raise funds. Our team is called “Team Zap-It” after the name of the trial I was on. We are asking that you support us and donate to this very worthwhile cause. A cure has to be found for this deadly disease.

To donate, CLICK HERE to take you to the Team Zap-IT! site, and then click “Donate Now”. I urge you to go to the website and learn what Angels Among Us is all about.

Thank you so much for your continued support!


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2 Responses to Feb. 21/2013

  1. Sean Law says:

    Hey Jamie,

    Glad to hear you’re still “at it and to it” as our sadly passed Stompin’ Tom would sing. It was quite heart wrenching to hear Meme and you on CBC radio. It made me wish I was a gazillionaire so I could make things right. It was so good to hear your voices though.

    If you want a little light reading you should check out this NTSB report on the tragic Mustang (Frankeinstang) crash at Reno in 2011….if you haven’t already.


    it’s very interesting.

    Dawn and I wish you and family the BEST.

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