Update #4

I have been resting at home since my surgery just over two weeks ago. I am doing fairly well and healing up. Most of the stitches have dissolved, so it’s a little more comfortable now to put my head on the pillow. I received the final pathology report and it is recurrent GBM (grade 4 brain cancer). This information was sent to Duke and I was informed that there are no trials currently open for me. I am now off the one I was on for 4 years. They gave me some suggestions, but I have not discussed any options with oncology here at home as of yet. With this disease there are not many options anyway. Please pray for my wife and family as we head into this next phase.

Thank you,

Jamie

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10 Responses to Update #4

  1. Carol Pond says:

    Dear Jamie and Family:

    I was sitting here on my sofa, looking out at the trees blowing in the wind. Enjoying a quiet time at home, and I got to thinking about you. Just read your recent post.

    Although your update isn’t good news, I know that you are trying your best to stay strong. I will continue to keep you and your family in my thoughts and prayers. Sending big hugs your way. Carol

  2. Anne Marie & Maurice says:

    Dear Jamie:

    You can count on Maurice’s and my prayers. I can say that your blog is a source of inspiration. I thank you for continuing to share. You can call on any of us if you need anything.

    AM&Moe

  3. Sandi Ring says:

    Hey Jamie,

    Sorry to hear about the outcome of your surgery my thoughts and prayers are with all of you.

    XOXO
    Sandi

  4. Natalie Steen says:

    Stay strong, they told mom when she had her cancer that attitude means a lot. Thoughts and prayers to you and meme.

    Natalie

  5. Pat Gander says:

    I am no expert and came across your blog reading about pharma developments. There is a company starting P1 trials for recurrent GBM that had fairly good success with their P1 trial for non-recurrent GBM. Its called Immunocelluar Therapeutics and the vaccines in question are ICT-107 & ICT-121. Maybe you could take a look. Just a suggestion.

  6. Roy and Cindy Steeves says:

    Jamie and family,
    Our thoughts and prayers are with you all. Your journey and attitude towards this hideous disease has been managed with so much determination, compassion, understanding and strength. We love and admire you all so much. We have faith that whatever the future brings, you will decide what is best for you and we will continue to keep you in our prayers. If there is anything we can do to be of assistance, please do not hesitate to call.

  7. Evelyn Webb says:

    Hi Jamie

    I worked with your Mom at Connors Bros. (she in Black’s Harbour, me in Mississauga) for several years and we have always kept in touch. I have followed your blog and you have been an inspiration to so many battling this vicious disease.

    She emailed me last week with the results of your latest tests and I just wanted to let you know that you and all of your family are in my thoughts and prayers.
    Regards
    Evelyn

  8. Brent Smith says:

    Jamie,
    Not great news, but with your determination, I am sure you can overcome this, too. You have been fighting this disease a while. I think another blog referred to it best – stay positive. Being positive has been part of your successes to date.
    I will continue to get updates from Tanya as well, but my thoughts will be with you as you fight this next phase and overcome that, too.

  9. Frank Whitenect says:

    Jamie, Meme, and family,

    As so many have said above and in previous blogs, you have always faced this disease with strength, determination, and a positive attitude. These attributes have helped you in the past, and will continue to help you as you face this next phase.
    We are very grateful that you’ve chosen to share your journey with us and will continue to keep you all in our thoughts and prayers as you work to defeat this cancer.
    Again, as many have already said; please don’t hesitate to ask if there is anything I can help with.

    All the Best,
    Frank

  10. Mary Jo Deans says:

    We wish your news were better. You have always been a source of strength to our Jennifer. Thank you for that and we wish you courage in your path ahead.

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